Better Care, Better Lives (2008) sets out a strategy for the future direction of children's palliative care services in order to improve the outcomes and experiences for children and young people living with life-limiting and life-threatening conditions and their families. CSM has collected information on the features of palliative care services and PCT joint commissioning arrangements for palliative care since the 2007/08 exercise. In 2008/09, further questions were asked of PCT commissioners about the funding of, and care pathway arrangements for, palliative care services and the PCTs involvement in palliative care planning groups. In 2009/10, questions also included the PCT having a lead for disability, complex health needs and palliative care and quality and performance standards for palliative care provision. At the service level in the 2009/10 exercise, there were changes to the questions about types of palliative care provision and new questions about bereavement support were introduced. Palliative care services were also asked a range of service level disability questions. The results of these can be found in the disability topic report.
Additional questions were added at an organisation level in the 2008/09 and 2009/10 exercises. This is noted above individual tables. At the service level, in the 2006/07 and 2007/08 exercise services were asked if palliative care was a focus of their work. If they answered yes they were then asked about the features of the service. In the 2008/09 exercise palliative care was introduced as a service type and the same follow up questions were asked. The service type follow up questions were changed for the 2009/10 mapping exercise.
|Palliative care national summary||Report||Tables|
Relevant Policy Documents
- AH: Department for Children, Schools and Families (2007) Aiming High for Disabled Children: Better Support for Families. London: TSO.
- BCBL: DH (2008) Better Care, Better Lives: Improving outcomes and experiences for children, young people and their families living with life-limiting and life-threatening conditions. London: TSO.